孤独症儿童家长使用数字化工具干预的质性研究

蔡赵娜; 刘李燕; 李佳笑

doi:10.3969/j.issn.1672-4933.2024.01.027

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孤独症儿童家长使用数字化工具干预的质性研究

孤独症康复 | 更新时间：2024-03-22

- 孤独症儿童家长使用数字化工具干预的质性研究
- Qualitative Study on the Use of Digital Tools for Intervention by Parents of Children with Autism
- 中国听力语言康复科学杂志 2024年22卷第1期页码：103-106
- 作者机构：
  
  1.北京阿叟阿巴科技有限公司北京 100085
  2.海南省妇女儿童医学中心海口 570206
- 作者简介：
  
  蔡赵娜硕士研究员；研究方向：儿童早期干预
  刘李燕本科初级技师；研究方向：儿童早期康复
  李佳笑，E-mail：lijiaxiao@alsolife.com
- 基金信息：
- DOI：10.3969/j.issn.1672-4933.2024.01.027
  中图分类号： R494
- 纸质出版日期：2024-01-15，
  
  收稿日期：2023-09-11，
- 稿件说明：
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蔡赵娜,刘李燕,李佳笑.孤独症儿童家长使用数字化工具干预的质性研究[J].中国听力语言康复科学杂志,2024,22(01):103-106.

CAI Zhao-na,LIU Li-yan,LI Jia-xiao.Qualitative Study on the Use of Digital Tools for Intervention by Parents of Children with Autism[J].Chinese Scientific Journal of Hearing and Speech Rehabilitation,2024,22(01):103-106.
蔡赵娜,刘李燕,李佳笑.孤独症儿童家长使用数字化工具干预的质性研究[J].中国听力语言康复科学杂志,2024,22(01):103-106. DOI： 10.3969/j.issn.1672-4933.2024.01.027.

CAI Zhao-na,LIU Li-yan,LI Jia-xiao.Qualitative Study on the Use of Digital Tools for Intervention by Parents of Children with Autism[J].Chinese Scientific Journal of Hearing and Speech Rehabilitation,2024,22(01):103-106. DOI： 10.3969/j.issn.1672-4933.2024.01.027.

摘要

目的

了解孤独症（ASD）儿童家长使用数字化认知康复训练干预工具的体验及需求。

方法

运用描述性质性研究方法，以17名ASD儿童家长为研究对象，对其进行半结构式访谈，分析总结其完成6周数字化认知康复训练后的体验及需求。

结果

被试访谈结果中归纳为5个主题，分别为个性化不足，需要更强的个性化设置；人机交互不流畅，需要更好的产品性能；康复计划推送逻辑不清，需要更明晰的推送计划；康复维度单一，需要多领域康复内容；家长支持不足，希望得到更多指导。

结论

数字化干预工具的设计和开发要注重个性化设置、产品性能及训练内容的清晰性和丰富性，同时注重家长支持功能，以提升家长和儿童数字化干预过程的体验感。

Abstract

Objective

To understand the experience and needs of parents of children with autism spectrum disorder (ASD) using a digital intervention tool for cognitive training.

Methods

Descriptive research methods were used to conduct semi-structured interviews with 17 parents of children with ASD

and their experiences and needs in managing their children's 6-week digital cognitive rehabilitation training were analyzed and summarized.

Results

There are 5 main themes to summarize: insufficient personalization

requiring stronger personalized settings; human-computer interaction is not smooth

requiring better product performance; the logic of promoting rehabilitation plans is unclear

and a clearer plan is needed for promotion; rehabilitation dimensions are single

requiring multi-field rehabilitation content; insufficient parental support

hoping for more guidance.

Conclusion

The design and development of digital intervention tools need to focus on personalized settings

product performance

and the richness of training content. At the same time

it is also necessary to consider the functional authority of parents to participate in management

and focus on empowering parents to improve the experience of parents and children in the digital intervention process.

关键词

孤独症谱系障碍儿童数字干预认知训练质性研究

Keywords

Autism spectrum disorderChildrenDigital interventionCognitive trainingQualitative study

references

DSM-5 American Psychiatric Association. Diagnostic and statistical manual of mental disorders[M].Arlington:American Psychiatric Publishing,2013.39-44.

Butter EM, Mulick JA, Metz B. Eight case reports of learning recovery in children with pervasive developmental disorders after early intervention[J].Behavioral Interventions,2010,21(4):227-243.

Virués-Ortega J. Applied behavior analytic intervention for autism in early childhood: Meta-analysis, meta-regression and dose-response meta-analysis of multiple outcomes[J].Clinical psychology review,2010,30(4):387-399.

Mineo BA, Ziegler W, Gill S, et al. Engagement with electronic screen media among students with autism spectrum disorders[J].Journal of Autism & Developmental Disorders,2009,39(1):172-187.

Hart M. Autism/excel study [A].In Proceedings of the 7th International ACM SIGACCESS Conference on Computers and Accessibility [C].US: Association for Computing Machinery,2005.136-141.

Zhu R, Hardy D, Myers T. Co-designing with adolescents with autism spectrum disorder: From ideation to implementation[A].In Proceedings of the 31st Australian Conference on Human-Computer-Interaction[C]. US:Association for Computing Machinery,2019.106-116.

蔡赵娜.认知能力评估康复软件对孤独症儿童的康复效果初探[J].中国听力语言康复科学杂志,2022,20(6):474-477.

季梦婷,杨艳.描述性质性研究方法学的综述[J].解放军护理杂志,2018,35(1):32-35.

李洪华,单玲,杜琳,等.儿童孤独症谱系障碍的治疗研究进展[J].中国当代儿科杂志,2015,17(8):886-892.

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