A Qualitative Study of Parental Care Experience for Children with Congenital Deafness Undergoing Cochlear Implantation

ZHU Chen-cheng; WU Ting; LIU-Pei; ZHANG Chun-jing; CUI Yuan-yuan; QIU Jian-xin; ZHANG Biao-xin

doi:10.3969/j.issn.1672-4933.2025.04.017

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A Qualitative Study of Parental Care Experience for Children with Congenital Deafness Undergoing Cochlear Implantation

Rehabilitation Education | 更新时间：2026-07-11

- A Qualitative Study of Parental Care Experience for Children with Congenital Deafness Undergoing Cochlear Implantation
- Chinese Scientific Journal of Hearing and Speech Rehabilitation Vol. 23, Issue 4, Pages: 429-432(2025)
- 作者机构：
  
  1.安徽医科大学第一附属医院普胸外科合肥 230022
  2.安徽医科大学护理学院合肥 230032
  3.安徽医科大学第一附属医院耳鼻咽喉头颈外科合肥 230022
- 作者简介：
- 基金信息：
- DOI：10.3969/j.issn.1672-4933.2025.04.017
  CLC： R473.72
- Received：17 October 2024，
  
  Published：15 July 2025
- 稿件说明：
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朱陈程,吴婷,刘佩等.先天性听力障碍行人工耳蜗植入患儿父母照护体验的质性研究[J].中国听力语言康复科学杂志,2025,23(04):429-432.

ZHU Chen-cheng,WU Ting,LIU-Pei ,et al.A Qualitative Study of Parental Care Experience for Children with Congenital Deafness Undergoing Cochlear Implantation[J].Chinese Scientific Journal of Hearing and Speech Rehabilitation,2025,23(04):429-432.
朱陈程,吴婷,刘佩等.先天性听力障碍行人工耳蜗植入患儿父母照护体验的质性研究[J].中国听力语言康复科学杂志,2025,23(04):429-432. DOI： 10.3969/j.issn.1672-4933.2025.04.017.

ZHU Chen-cheng,WU Ting,LIU-Pei ,et al.A Qualitative Study of Parental Care Experience for Children with Congenital Deafness Undergoing Cochlear Implantation[J].Chinese Scientific Journal of Hearing and Speech Rehabilitation,2025,23(04):429-432. DOI： 10.3969/j.issn.1672-4933.2025.04.017.

摘要

目的

探讨先天性听力障碍患儿父母的照护体验。

方法

采用目的抽样法选取2023年6月～7月在合肥市某三级甲等医院耳鼻咽喉头颈外科收治的15名先天性听力障碍患儿父母进行半结构访谈，应用Colaizzi七步分析法分析资料并提炼主题。

结果

先天性听力障碍患儿父母照护体验可归纳为负性情绪反应强烈、负罪感显著、高度疾病不确定感、身心负担沉重、创伤后成长5个主题。

结论

先天性听力障碍患儿父母照护体验复杂，医护人员应关注患儿父母的心理状态，通过专业的心理疏导和干预措施，帮助其有效缓解负性情绪、减轻负罪感，并提升对疾病的认知水平、积极应对策略，肯定其在逆境中的努力与成长，促使患儿照护质量和康复效果的提升。

Abstract

Objective

To explore the care experience of parents of children with congenital deafness.

Methods

15 parents of children with congenital deafness who were admitted to the Department of Otolaryngology and Head and Neck Surgery of a Grade A tertiary hospital in Hefei City from June to July 2023 were selected for semi-structured interviews. The data were analyzed by Colaizzi seven-step analysis method and themes were extracted. 5 themes were extracted: negative emotional response was strong

significant guilt

high disease uncertainty

heavy physical and mental burden

and post-traumatic growth.

Conclusion

The care experience of the parents of children with congenital deafness is complex and diverse. Medical staff should focus on the psychological state of the parents of children with congenital deafness

and help them effectively relieve negative emotions

reduce guilt

improve their cognition of the disease through professional psychological counseling and intervention measures. Positive coping strategies should be adopted to affirm their efforts and growth in adversity. To promote the quality of care and rehabilitation of children.

关键词

Keywords

references

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